2026 Creating Connections Community Conference

The CACNA1A Foundation’s 2026 Community Conference will take place in Houston, Texas, and we’re thrilled to gather our community again. The event will be offered in a hybrid format, so whether you join us in person or tune in from home, you’ll be able to participate fully in the sessions and discussions.

Our conference brings together individuals and families living with CACNA1A-related disorders, caregivers, researchers, clinicians, scientists, advocates, and industry partners. It’s a unique opportunity for everyone in the CACNA1A community to learn, connect, and build meaningful collaborations.

TENTATIVE 2026 CONFERENCE AGENDA

Overview of the Tentative Schedule:

July 9th—Clinical Care Intakes and the opportunity to participate in Research Studies

July 10th—Sessions focused on Clinical Care, Research, and Genetics. Evening activity: Join us for an adult cocktail party while the kids have a pizza-and-movie night.

July 11th—Sessions focused on Family Support. Evening activity - Please join us for a family dinner and dance party! (cowboy boots optional)

Please note that the actual cost of the conference is approximately $750 per person. Thanks to the generosity of our sponsors and donors, the CACNA1A Foundation can offset a significant portion of this cost, helping make the conference more accessible to families. Please consider being a Friends of the Foundation ($250) or a Family Sponsor ($500) - Add the sponsorship when purchasing your tickets or use Sponsor our Event Button to learn more (scroll to the bottom on the right hand side). We are so grateful for your support!

For more information:

https://www.cacna1a.org/2026-conference