In Memory of Anthony Michael Giunta

Anthony ("Tony"), who was born on June 12, 1947, passed away on July 16, 2024.

Tony was a wonderful influence on his 16-year-old grandson Paul Anthony Spandikow, who has a rare CACNA1A-related brain disorder. He helped Paul learn to walk, talk, and be a great person. In addition, Tony was one of Paul’s best friends. He always wanted the best for his grandson and anyone affected by this rare disease. Thank you for your donation in memory of Tony. It will support the CACNA1A Foundation's mission to find targeted treatments and a cure for this rare disease.

CACNA1A Foundation: Transforming Lives Through Research and Support

CACNA1A-related disorders encompass a group of neurological and developmental conditions resulting from mutations in the CACNA1A gene. These rare diseases pose significant challenges for affected individuals, including developmental delays, autism, intellectual disability, movement and coordination disorders, debilitating dizziness, hemiplegic migraines (similar to stroke episodes), and speech and language issues.

Despite the severity of these disorders, there are currently no targeted treatment options or a cure available. However, hope lies in the work of the CACNA1A Foundation—a parent-led non-profit organization dedicated to making a difference in the lives of children with brain disorders. The Foundation focuses on three critical areas:

• Advancing Research: The Foundation aims to uncover insights into the underlying mechanisms of CACNA1A-related disorders by supporting scientific research. This research is essential for developing targeted treatments.
• Supporting Families: The Foundation provides resources, guidance, and emotional support to families navigating the challenges of caring for a loved one with these disorders. Connecting families and sharing experiences fosters a sense of community.
• Raising Awareness: Educating the public, healthcare professionals, and policymakers about CACNA1A-related disorders is crucial as increased awareness can lead to earlier diagnoses, improved care, and ultimately, progress toward finding a cure.

Together, we can work toward transforming the lives of those affected by these debilitating brain disorders. To learn more, please visit their website: https://www.cacna1a.org/

As a designated 501(c)(3) nonprofit organization, donations to the CACNA1A Foundation are tax-deductible to the fullest extent allowed by law. EIN 84-4985747

You may also mail a tax-deductible donation to:

CACNA1A Foundation
31 Point Road
Norwalk, CT 06854

If you have any questions about your gift, please email info@cacna1a.org.

WE ARE SO GRATEFUL FOR YOUR SUPPORT OF THIS ORGANIZATION WHICH MEANS SO MUCH TO OUR FAMILY