Lisa Manaster's Fundraiser
I'm cycling with purpose to help #cureCACNA1A
Join me and help make a difference. Please support my ride today.
Alison Finger
"Congratulations on the Bike Ride! Glad to help support all you do!"
$100
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Sarah Ritchey
"Such great energy behind important work/research! Go Lisa!"
$75
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Joanne Berman
"You are the best mother and advocate ❤️ "
$180
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Leslie Lemonick
"Keep up the great work! You’re amazing!"
$100
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Melissa and Matt Rubel
I donated in support of this campaign.
$118
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Jenny Eichinger
"Lisa, you are inspiring!"
$100
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Lissa Steele
I donated in support of this campaign.
$100
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Jennifer Freedman
"Go Lisa!!!🚴🏻♀️"
$500
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Andrea Soskel
"Ride Lisa ride!"
$250
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David Weintrob
"Best wishes to all the riders and families for such a good cause - Corinne and David "
$250
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Donna and Todd Korren
"Incredible work you are doing! "
$180
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Richard Hellinger
I donated in support of this campaign.
$500
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Elyssa Hurlbut
"Amazing work! Keep the momentum going!"
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Karen Jenkins
"Good luck Lisa! Proud of all you are doing!!"
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Christine Brown
"You’re amazing! You continue to amaze and inspire me!"
$100
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Nancy Singer
I donated in support of this campaign.
$100
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Lenore DiLeo-Berner
I donated in support of this campaign.
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Aryn Hellinger
I donated in support of this campaign.
$100
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Lisa Martin
I donated in support of this campaign.
$250
A supporter of Lisa Manaster
I donated in support of this campaign.
$100
On May 4, 2025, I’ll be cycling in the NYC TD Five Boro Bike Tour—a 40-mile journey through New York City’s iconic boroughs.
This ride is personal to me. In 2018, my daughter Emily was diagnosed with CACNA1A, a rare disease that finally explained her neurodevelopmental challenges. While discovering the cause was a relief, the lack of available treatments was devastating. That’s why, two years later, I co-founded the CACNA1A Foundation—to bring hope to families like ours.
Progress in rare disease research can feel painfully slow, but five years of relentless work are starting to pay off. We’ve drawn the attention of pharmaceutical companies, funded groundbreaking research, and hosted global scientific and family conferences. And, on March 17th, we opened the world's first multidisciplinary clinic for CACNA1A at UT Houston—a place where patients can go for comprehensive care. The momentum is real, but we need more resources to turn this hope into life-changing treatments.
That’s where you come in. I’m hoping to raise $2500 for the CACNA1A Foundation, and I’d be honored if you could support me. Every dollar goes toward advancing research, supporting families, and paving the way for treatments for CACNA1A-related disorders.
About the CACNA1A Foundation:
The Foundation is dedicated to improving the lives of those affected by CACNA1A-related disorders, which can cause epilepsy, autism, intellectual disabilities, and movement challenges. Through funding research, providing resources, and fostering connections, the Foundation is bringing hope to families navigating these lifelong conditions. To learn more about our work, please check out our 2024 Impact Report.
Families deserve answers, options, and hope for a brighter future. Your support, whether through a donation or simply cheering me on, means the world to me and every family affected by CACNA1A.
Let’s make a difference together. Thank you for considering a donation and being part of my ride.