Rachel Manaster's Fundraiser
I'm cycling with purpose to help #cureCACNA1A
Join me and help make a difference. Please support my ride today.
Marilyn Hellinger
"Rachel, WE will always support your endeavors. Love, Nana and Grandpa"
$250
Brennan Reilly
"Thank you for riding for Emily and Avery!"
$500
This ride is personal to me. In 2018, my sister Emily was diagnosed with CACNA1A, a rare disease that finally explained her neurodevelopmental challenges. While discovering the cause was a relief, the lack of available treatments was devastating. That’s why, two years later, my mother co-founded the CACNA1A Foundation—to bring hope to families like ours.
Progress in rare disease research can feel painfully slow, but five years of relentless work is starting to pay off. The CACNA1A Foundation has drawn the attention of pharmaceutical companies, funded groundbreaking research, and hosted global scientific and family conferences. The momentum is real, but we need more resources to turn this hope into life-changing treatments.
That’s where you come in. I’m riding to raise $1,000 for the CACNA1A Foundation, and I’d be honored if you’d support me. Every dollar goes toward advancing research, supporting families, and paving the way for treatments for CACNA1A-related disorders.
About the CACNA1A Foundation:
The Foundation is dedicated to improving the lives of those affected by CACNA1A-related disorders, which can cause epilepsy, autism, intellectual disabilities, and movement challenges. Through funding research, providing resources, and fostering connections, the Foundation is bringing hope to families navigating these lifelong conditions. To learn more about the work of the CACNA1A Foundation work, please check out their 2024 Impact Report.
Families deserve answers, options, and hope for a brighter future. Your support, whether through a donation or simply by cheering me on, means the world to me and every family affected by CACNA1A.
Let’s make a difference together. Thank you for considering a donation and being part of my ride.