Riding for Team CACNA1A

Hi friends,

On May 3rd, I’ll be riding 40 miles through all five boroughs of New York City in the iconic TD Five Boro Bike Tour as part of Team CACNA1A.

I’m participating to help raise awareness and critical funds for the CACNA1A Foundation, which supports individuals and families living with rare, life-altering neurological disorders caused by mutations in the CACNA1A gene.

My cousin Emily has lived with rare neurological disorders for over 28 years. It wasn’t until her early 20s when technology finally caught up, that doctors were able to identify the genetic mutation on CACNA1A. Since then, my incredible aunt and Emily’s mom, Lisa. has connected families across the country and even throughout the world with CACNA1A resources and support. I am riding to continue their mission that has already changed my family’s life and countless others!

CACNA1A-related neurodevelopment disorders can include epilepsy, developmental delays, autism, stroke-like episodes, and speech and language, and movement and coordination challenges. For many families, diagnosis is complex, care is fragmented, and treatment options are limited.

The CACNA1A Foundation is working to change that by:

• Funding research aimed at developing targeted treatments
• Providing trusted education and resources for families
• Connecting patients, clinicians, and researchers to accelerate progress

I’ve committed to raising $2,000, and I would be incredibly grateful for your support. No donation is too small — every gift helps move this research forward and brings hope to families who urgently need answers.

Thank you for supporting my ride and standing with the rare disease community.

With gratitude,
Dani

40 miles. One rare cause. Endless impact.